Standardized Data Set

Standard setting agencies and facility-specific needs dictate the data elements captured in the UPMC Network Cancer Registry Database.  The following summarizes these elements but should not be considered all-inclusive. For more information on the standard data exchange layout, visit: http://www.naaccr.org/StandardsandRegistryOperations/VolumeI.aspx

Abstracting: Core Data Elements
Standardized Rules and Codes

Cancer Registry
Abstract Components

Demographics

Cancer Identification

Stage of Disease

1st Course Treatment

  • Patient name
  • SSN
  • MRN
  • Marital Status
  • Address
  • Phone numbers
  • Place of Birth
  • Date of Birth
  • Gender
  • Race 1-5
  • Spanish Origin
  • Tobacco History
  • Alcohol History
  • Family History
  • Accession #
  • Sequence #
  • Year First Seen
  • Class of Case
  • Date of 1st Contact
  • Admission Date
  • Discharge Date
  • Date of Initial Dx
  • Date of 1st Positive Bx
  • Primary Site
  • Laterality
  • Morphology
  • Tumor Behavior
  • Grade
  • Diagnostic Confirmation
  • Tumor Multiplicity
  • Diagnostic Procedures
  • Tumor Size
  • Lymph nodes exam
  • Lymph nodes positive
  • Sites of Distant Mets
  • Summary Stage
  • AJCC Stage
  • Collaborative Stage
  • Site Specific Factors
  • Staging Procedures
  • Date of 1st Surgical Procedure
  • Date of 1st Systemic Therapy
  • Date of Most Definitive Surgery
  • Surgery of the Primary Site
  • Surgical Margins
  • Scope of LN Surgery
  • Surgery of Regional/ Distant Sites
  • Reason No Surgery
  • Radiation Therapy Start/ End Dates
  • Radiation Therapy Details
  • Reason No Radiation Therapy
  • Systemic / Surgery Sequence
  • Date Chemotherapy Started
  • Chemotherapy Regimen
  • Reason No Chemotherapy
  • Date Hormone Therapy Started
  • Hormone Therapy Type
  • Reason No Hormone Therapy
  • Date Immunotherapy Started
  • Immunotherapy Details
  • Reason No  Immunotherapy
  • Other Treatment
  • Clinical Trials

General overview, not all inclusive

 

Outcomes, Research: Core Data Elements
Standardized Rules and Codes

Cancer Registry
Follow Up/ Outcomes/ Research

General Contact

Recurrence

Subsequent Treatment

Research Driven Data Collection

  • Date of Last Contact/ Death
  • Vital Status
  • Cancer Status
  • Follow Up Source
  • Follow Up Method
  • Cause of Death
  • Place of Death (if known)
  • Autopsy
  • Physicians
  • Other Contacts
  • Date of 1st Recurrence
  • Type of First Recurrence
  • Recurrence Site(s)
  • Distant Recurrence Site(s)
  • Date(s)
  • Surgery
  • Chemotherapy
  • Radiation Therapy
  • Hormone Therapy
  • Immunotherapy
  • Palliative Care
  • Clinical Research
  • Other Contacts
Disease specific research needs in the following areas

  • Breast/Gyne
  • Head and neck
  • Lung
  • Melanoma
  • Mesothelioma

General overview, not all inclusive