Standardized Data Set

Standard setting agencies and facility-specific needs dictate the data elements captured in the UPMC Network Cancer Registry Database. The following summarizes these elements but should not be considered all-inclusive. For more information on the standard data exchange layout, visit: https://www.naaccr.org/data-standards-data-dictionary/

Abstracting: Core Data Elements Standardized Rules and Codes
Cancer Registry Abstract Components
Demographics	Cancer Identification	Stage of Disease	1st Course Treatment
Patient name SSN MRN Marital Status Address Phone numbers Place of Birth Date of Birth Gender Race 1-5 Spanish Origin Tobacco History Alcohol History Family History	Accession # Sequence # Year First Seen Class of Case Date of 1st Contact Admission Date Discharge Date Date of Initial Dx Date of 1st Positive Bx Primary Site Laterality Morphology Tumor Behavior Grade Diagnostic Confirmation Tumor Multiplicity Diagnostic Procedures	Tumor Size Lymph nodes exam Lymph nodes positive Sites of Distant Mets Summary Stage AJCC Stage Collaborative Stage Site Specific Factors Staging Procedures	Date of 1st Surgical Procedure Date of 1st Systemic Therapy Date of Most Definitive Surgery Surgery of the Primary Site Surgical Margins Scope of LN Surgery Surgery of Regional/ Distant Sites Reason No Surgery Radiation Therapy Start/ End Dates Radiation Therapy Details Reason No Radiation Therapy Systemic / Surgery Sequence Date Chemotherapy Started Chemotherapy Regimen Reason No Chemotherapy Date Hormone Therapy Started Hormone Therapy Type Reason No Hormone Therapy Date Immunotherapy Started Immunotherapy Details Reason No Immunotherapy Other Treatment Clinical Trials
General overview, not all inclusive

Outcomes, Research: Core Data Elements *Standardized Rules and Codes*
Cancer Registry Follow Up/ Outcomes/ Research
General Contact	Recurrence	Subsequent Treatment	Research Driven Data Collection
Date of Last Contact/ Death Vital Status Cancer Status Follow Up Source Follow Up Method Cause of Death Place of Death (if known) Autopsy Physicians Other Contacts	Date of 1st Recurrence Type of First Recurrence Recurrence Site(s) Distant Recurrence Site(s)	Date(s) Surgery Chemotherapy Radiation Therapy Hormone Therapy Immunotherapy Palliative Care Clinical Research Other Contacts	Disease specific research needs in the following areas Breast/Gyne Head and neck Lung Melanoma Mesothelioma
General overview, not all inclusive

UPMC Network Cancer Registry

UPMC Hillman Cancer Center Registry Information Services